Connected Rheumatology

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Systemic Lupus Erythematosis

Transform Your Autoimmune Health with Small Diet Changes

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Managing an autoimmune condition can be challenging, and one of the most common questions asked is, “What should I be eating?” It’s a great question, and one that shows you’re ready to take charge of your health. Let’s dive into how your diet can make a big difference when you’re living with an autoimmune disease.

The Role of Diet in Autoimmune Disease

When you’re dealing with an autoimmune disease, your immune system is on overdrive, causing inflammation throughout your body. Inflammation is a natural body response but becomes overdramatic and inappropriate in autoimmune disease, leading to a range of uncomfortable symptoms. That’s where diet comes in.

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Hospitalized with autoimmune disease

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The truth is, only a minority of patients with autoimmune disease will ever really need to put this information in action. When you are hospitalized with an autoimmune condition you feel scared and helpless. Knowing what to expect and how best to take care of yourself during and after your hospital stay BEFORE it ever happens is self-care every autoimmune patient needs. 

Regardless of the incredible advancements we’ve made in rheumatology, sometimes the safest place for an autoimmune patient is the hospital. This could be to receive IV (intravenous) treatments, to undergo certain tests quickly or to stabilize and monitor worrisome vital signs. Autoimmune patients, in particular, can find themselves needing the hospital as there is a wide variety of symptoms possible.

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Discoid Lupus Explained

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Discoid lupus must be just like “regular” lupus, right? I mean, lupus is lupus, no? You’d think so, but like most things within Rheumatology, it rarely makes that much sense. When one speaks of “lupus” they are usually talking about SLE or Systemic Lupus Erythematosus. SLE is a systemic (affects the entire body), autoimmune condition. Discoid Lupus, or DLE, is a condition solely of the skin. One can certainly have “discoid lesions” when they have SLE and we are always on alert for the development of SLE, but rest assured, they are two different entities. 

The name “discoid” stems from the description of the typical rash seen with DLE: a disc shaped, red patch with a scale and with scaring. It is common to worry about “progression to SLE.” Thankfully, development of SLE is the exception, rather than the rule. Although dermatologists are often the main caregivers of DLE, a full evaluation by a rheumatologist can provide insight and peace of mind.

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Pregnancy & Lupus

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I’ve sat down with hundreds of young women as they find out they have lupus. Once a diagnosis is made, the conversations are largely one-sided. Explaining what lupus is, how we diagnosis it, and what we are going to do about it can take a while. I’ve seen every possible emotion you can think of wash over the faces of women as they absorb this news: relief at an answer, sadness at what it means, anger at why them, and then fear for their future. The fear, for many, circles around concerns over the possibility of a pregnancy with lupus. 

Lupus can affect anyone, but young women are the most commonly affected. Women in their teens, twenties and thirties, or what we call in medicine, the child-bearing years. Discussing issues related to pregnancy is a necessary component to a well-rounded lupus treatment strategy.

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Know the Prednisone Side Effects

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Let me be clear – I wouldn’t want to be on prednisone either. In fact, when suffering from a wicked case of vertigo, I fought my doctor buddies who advised I take a Medrol dose pack to ease the symptoms.

“I’m going to gain weight!” “I’m going to have anxiety!”

As a Rheumatologist, I am well-versed in all the possible side effects of prednisone (and similar meds) and feared the worse.

But I also know that there is a time a place for prednisone. Not only was I currently in need of the benefits of prednisone, many of my patients are as well. But there ARE side effects that need to be considered and discussed.

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