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Lupus

How to Handle Unwanted Autoimmune Advice

February 17, 2025 ·

Handling everyone's advice regarding your autoimmune condition can take time and practice

When you’re diagnosed with an autoimmune disease, it feels like your world shifts overnight. You’ve got new doctors, new medications, and a long list of new symptoms to manage. But one of the most surprising parts of the whole journey? The flood of well-meaning, yet unsolicited, advice that starts pouring in. It’s like everyone you know suddenly becomes a health expert!

Dealing with this constant input can be tough, especially when you’re already navigating the complexities of your rheumatology care. But before you feel overwhelmed, let’s talk about how to sort through the noise and stay focused on what really matters—your health, your goals, and your well-being.

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Why Primary Care is Essential for Autoimmune Patients

February 3, 2025 ·

Everyone with RA or lupus needs their primary care doctor and rheumatologist

Managing an autoimmune condition can be complex and overwhelming, especially when you’re frequently visiting your rheumatologist. However, it’s crucial not to overlook the importance of your primary care doctor (PCP). Let’s explore how a good relationship with your PCP can benefit your heart health, coordinate your care, and keep you up-to-date on vaccinations.

The Importance of Cardiovascular Health

Heart health is a critical aspect to monitor when living with an autoimmune condition. Conditions like rheumatoid arthritis, lupus, and psoriatic arthritis increase the risk of cardiovascular disease due to chronic inflammation. Your PCP is essential in regularly checking your blood sugar, cholesterol, blood pressure, and weight, ensuring these risk factors are controlled.

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Can Your Medications Cause Lupus?

January 27, 2025 ·

Drug induced lupus can act like lupus but resolves when the medication is stopped

Drug-induced lupus, a form of lupus caused by certain medications, and not something you hear much about. It differs from the regular “systemic” lupus in multiple ways, including the expected symptoms, the positive blood tests and the prognosis. 

What is Drug-Induced Lupus?

We’ve all heard of lupus, but did you know there’s a version that can be triggered by medications? It is called drug-induced lupus. Unlike the more familiar systemic lupus erythematosus (SLE), which is a chronic autoimmune disease, drug-induced lupus occurs when your body’s immune system reacts to a specific medication.

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Understanding Lupus Hand Symptoms

January 13, 2025 ·

Lupus hand symptoms can be confusing and have a significant impact on your life

When doctors talk about lupus, the focus often lands on the kidneys. However, there’s one part of the body almost every lupus patient will face issues with: the hands. As a rheumatologist, I can tell you, the hands reveal so much and when you know what to look out for, you can alert your doc and together develop a plan. 

Lupus Arthritis: Joint Pain and Beyond

It might not surprise you to know that joint pain is a part of lupus, as it is with most autoimmune conditions. More than 90% of lupus patients will experience some form of joint pain or arthritis. But when we hear “arthritis,” we tend to think of rheumatoid arthritis (RA), not lupus, and miss the nuances of lupus arthritis.

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Talking About Your Autoimmune Pain

December 23, 2024 ·

Learning how to talk about your pain can get you relief

Living with an autoimmune disease often means navigating a world of chronic pain. This pain can be frustrating and hard to explain, which can make it difficult to communicate effectively with your doctor. If you’re feeling like your pain isn’t being understood or taken seriously, you’re not alone—let’s discuss some ways to bridge that gap.

Why Is Autoimmune Pain So Hard to Explain?

The pain experienced with autoimmune diseases can be incredibly complex. One reason it’s so difficult to describe is because pain itself is subjective—what feels like a 3 on the pain scale for one person might feel like an 8 for someone else. Plus, autoimmune-related pain isn’t always consistent. It can flare up, calm down, and then change location or intensity from one day to the next.

[Read more…] about Talking About Your Autoimmune Pain
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