Ankylosing Spondylitis

What to consider when facing a biologic

February 24, 2025 · Leave a Comment

Talking about changes to our autoimmune treatment can be overwhelming—especially if the conversation turns to biologics. Many people managing rheumatoid arthritis (RA) or other autoimmune diseases find themselves in a rheumatologist’s office, hearing that a biologic might be the next best step. So, what exactly are biologics, and how can you make the best decision for yourself? Let’s dive into the basics and explore some key questions to ask so you can feel more comfortable with whatever path you choose.

What Are Biologics?

Biologics are a class of medications that have brought a whole new level of specificity to autoimmune treatment. Unlike traditional drugs, biologics are made from living organisms—proteins, antibodies, or cells—which scientists isolate and modify to target specific aspects of the immune system. For people with autoimmune diseases, these medications can help reduce inflammation and limit the immune system’s overactivity that causes joint damage.

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How to Handle Unwanted Autoimmune Advice

February 17, 2025 · Leave a Comment

When you’re diagnosed with an autoimmune disease, it feels like your world shifts overnight. You’ve got new doctors, new medications, and a long list of new symptoms to manage. But one of the most surprising parts of the whole journey? The flood of well-meaning, yet unsolicited, advice that starts pouring in. It’s like everyone you know suddenly becomes a health expert!

Dealing with this constant input can be tough, especially when you’re already navigating the complexities of your rheumatology care. But before you feel overwhelmed, let’s talk about how to sort through the noise and stay focused on what really matters—your health, your goals, and your well-being.

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Why Primary Care is Essential for Autoimmune Patients

February 3, 2025 · Leave a Comment

Managing an autoimmune condition can be complex and overwhelming, especially when you’re frequently visiting your rheumatologist. However, it’s crucial not to overlook the importance of your primary care doctor (PCP). Let’s explore how a good relationship with your PCP can benefit your heart health, coordinate your care, and keep you up-to-date on vaccinations.

The Importance of Cardiovascular Health

Heart health is a critical aspect to monitor when living with an autoimmune condition. Conditions like rheumatoid arthritis, lupus, and psoriatic arthritis increase the risk of cardiovascular disease due to chronic inflammation. Your PCP is essential in regularly checking your blood sugar, cholesterol, blood pressure, and weight, ensuring these risk factors are controlled.

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Rheumatology Appointments, Morning Stiffness & Joint Pain

January 20, 2025 · Leave a Comment

Let’s delve into some crucial topics brought up by my newsletter readers: how to handle the wait for your rheumatology appointments, the mystery of morning stiffness, and dealing with joint pain.

Palindromic Arthritis: A Closer Look

One of the most intriguing conditions I frequently encounter is palindromic arthritis. This type of inflammatory arthritis comes and goes, causing intense but short-lived joint inflammation and pain. It tends to affect the joints of your hands, fingers, knees, and shoulders. Unlike gout or CPPD (pseudogout), which can have similar symptoms, palindromic arthritis doesn’t involve crystals in the joint fluid. Instead, it affects the structures around the joint, like tendons and ligaments.

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Talking About Your Autoimmune Pain

December 23, 2024 · Leave a Comment

Living with an autoimmune disease often means navigating a world of chronic pain. This pain can be frustrating and hard to explain, which can make it difficult to communicate effectively with your doctor. If you’re feeling like your pain isn’t being understood or taken seriously, you’re not alone—let’s discuss some ways to bridge that gap.

Why Is Autoimmune Pain So Hard to Explain?

The pain experienced with autoimmune diseases can be incredibly complex. One reason it’s so difficult to describe is because pain itself is subjective—what feels like a 3 on the pain scale for one person might feel like an 8 for someone else. Plus, autoimmune-related pain isn’t always consistent. It can flare up, calm down, and then change location or intensity from one day to the next.

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