Connected Rheumatology

You trusted home for autoimmune information

Elizabeth

Heartburn with Autoimmune Conditions

·

Today I’m diving into a topic that affects many of us but often goes unnoticed in those with autoimmune conditions: heartburn, or as it’s medically known, Gastroesophageal Reflux Disease (GERD). 

We’re reviewing all things GERD and unpacking why it matters, especially for those with autoimmunity. We’ll also offer some practical tips for managing this often-overlooked aspect of our health

What Exactly is Heartburn?

Heartburn occurs when stomach contents flow back up into your esophagus, causing discomfort, burning sensations, and sometimes a sour taste in your mouth. While it may seem like just a normal part of life, it’s more prevalent among those with autoimmune conditions than you might think.

[Read more…] about Heartburn with Autoimmune Conditions

Hospitalized with autoimmune disease

·

The truth is, only a minority of patients with autoimmune disease will ever really need to put this information in action. When you are hospitalized with an autoimmune condition you feel scared and helpless. Knowing what to expect and how best to take care of yourself during and after your hospital stay BEFORE it ever happens is self-care every autoimmune patient needs. 

Regardless of the incredible advancements we’ve made in rheumatology, sometimes the safest place for an autoimmune patient is the hospital. This could be to receive IV (intravenous) treatments, to undergo certain tests quickly or to stabilize and monitor worrisome vital signs. Autoimmune patients, in particular, can find themselves needing the hospital as there is a wide variety of symptoms possible.

[Read more…] about Hospitalized with autoimmune disease

When hands change: Hand Arthritis

·

“My hands are deforming just like my grandmothers.”

We don’t think about how much our hands do for us until they start giving us problems. We assume we will be able grip our steering wheel, type on our keyboards and button our shirts. But for many of us, usually in our 40’s (although it can start earlier), we start to notice changes in our hands. A day of work at our computer ends with our hands sore. We can’t quite open jars as easily as before and we may notice seemingly random shooting pains and numbness in our fingers. These symptoms can go unnoticed until we start noticing our hands LOOK different and rings don’t fit. Shoot….time to see a doctor!

When someone ends up in my office worried about their hands, I know their number one concern is Rheumatoid Arthritis (RA). A quick visit to Dr. Google, informs everyone that RA could cause hand pain and lead to “deformities.” For most of us with hand pain (including myself), RA will not be the culprit, but instead, osteoarthritis (OA).

[Read more…] about When hands change: Hand Arthritis

Discoid Lupus Explained

·

Discoid lupus must be just like “regular” lupus, right? I mean, lupus is lupus, no? You’d think so, but like most things within Rheumatology, it rarely makes that much sense. When one speaks of “lupus” they are usually talking about SLE or Systemic Lupus Erythematosus. SLE is a systemic (affects the entire body), autoimmune condition. Discoid Lupus, or DLE, is a condition solely of the skin. One can certainly have “discoid lesions” when they have SLE and we are always on alert for the development of SLE, but rest assured, they are two different entities. 

The name “discoid” stems from the description of the typical rash seen with DLE: a disc shaped, red patch with a scale and with scaring. It is common to worry about “progression to SLE.” Thankfully, development of SLE is the exception, rather than the rule. Although dermatologists are often the main caregivers of DLE, a full evaluation by a rheumatologist can provide insight and peace of mind.

[Read more…] about Discoid Lupus Explained

Pregnancy & Lupus

·

I’ve sat down with hundreds of young women as they find out they have lupus. Once a diagnosis is made, the conversations are largely one-sided. Explaining what lupus is, how we diagnosis it, and what we are going to do about it can take a while. I’ve seen every possible emotion you can think of wash over the faces of women as they absorb this news: relief at an answer, sadness at what it means, anger at why them, and then fear for their future. The fear, for many, circles around concerns over the possibility of a pregnancy with lupus. 

Lupus can affect anyone, but young women are the most commonly affected. Women in their teens, twenties and thirties, or what we call in medicine, the child-bearing years. Discussing issues related to pregnancy is a necessary component to a well-rounded lupus treatment strategy.

[Read more…] about Pregnancy & Lupus